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Psychosocial

Section edited by Nancy Preston

This section considers submissions that focus on psychosocial, spiritual, existential, philosophical, and psychological well being of patients and their family/carers in a palliative care setting.

Page 2 of 3

  1. A considerable number of terminally-ill adult children are outlived by at least one parent and receive palliative care prior to their death. At the same time, adult children continue to be confronted with thei...

    Authors: Stephanie Stiel, Eva-Maria Stelzer, Nils Schneider and Franziska A. Herbst

    Citation: BMC Palliative Care 2018 17:68

    Content type: Study protocol

    Published on:

  2. Self-care practice within the palliative care workforce is often discussed, yet seemingly under-researched. While palliative care professionals are required to implement and maintain effective self-care strate...

    Authors: Jason Mills, Timothy Wand and Jennifer A. Fraser

    Citation: BMC Palliative Care 2018 17:63

    Content type: Research article

    Published on:

  3. In palliative care contexts, support programs for families with a severely ill parent and minor children are few, and even fewer have been evaluated scientifically. The aims of this study are to examine feasib...

    Authors: Rakel Eklund, Ulrika Kreicbergs, Anette Alvariza and Malin Lövgren

    Citation: BMC Palliative Care 2018 17:35

    Content type: Study protocol

    Published on:

  4. The use of music as therapy in multidisciplinary end-of-life care dates back to the 1970s and nowadays music therapy (MT) is one of the most frequently used complementary therapy in in-patient palliative care ...

    Authors: W. Schmid, J. H. Rosland, S. von Hofacker, I. Hunskår and F. Bruvik

    Citation: BMC Palliative Care 2018 17:32

    Content type: Research article

    Published on:

  5. Cervical cancer is a very common disease among women in Ghana and in the world as a whole. However, there is a dearth of information on the mechanisms cervical cancer patients adopt to cope with the condition ...

    Authors: Charity Binka, Samuel Harrenson Nyarko, Kofi Awusabo-Asare and David Teye Doku

    Citation: BMC Palliative Care 2018 17:24

    Content type: Research article

    Published on:

  6. International guidance for advance care planning (ACP) supports the integration of spiritual and religious aspects of care within the planning process. Religious leaders’ perspectives could improve how ACP pro...

    Authors: Amanda Pereira-Salgado, Patrick Mader, Clare O’Callaghan, Leanne Boyd and Margaret Staples

    Citation: BMC Palliative Care 2017 16:79

    Content type: Research article

    Published on:

  7. Understanding end of life preferences amongst the oldest old is crucial to informing appropriate palliative and end of life care internationally. However, little has been reported in the academic literature ab...

    Authors: Merryn Gott, Rosemary Frey, Janine Wiles, Anna Rolleston, Ruth Teh, Tess Moeke-Maxwell and Ngaire Kerse

    Citation: BMC Palliative Care 2017 16:76

    Content type: Research article

    Published on:

  8. When patients are facing the ends of their lives, spiritual concerns often become more important. It is argued that effective, integrated palliative care should include addressing patients’ spiritual wellbeing...

    Authors: Renske Kruizinga, Michael Scherer-Rath, Johannes B. A. M. Schilderman, Mariëtte Weterman, Teresa Young and Hanneke W. M. van Laarhoven

    Citation: BMC Palliative Care 2017 16:67

    Content type: Research article

    Published on:

  9. The aims of this study were to gain a better understanding of how bereaved family members perceive the quality of EOL care by comparing their satisfaction with quality of end-of-life care across four different...

    Authors: Kelli Stajduhar, Richard Sawatzky, S. Robin Cohen, Daren K. Heyland, Diane Allan, Darcee Bidgood, Leah Norgrove and Anne M. Gadermann

    Citation: BMC Palliative Care 2017 16:59

    Content type: Research article

    Published on:

  10. Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a s...

    Authors: Lorraine Holtslander, Sharon Baxter, Kelly Mills, Sarah Bocking, Tina Dadgostari, Wendy Duggleby, Vicky Duncan, Peter Hudson, Agatha Ogunkorode and Shelley Peacock

    Citation: BMC Palliative Care 2017 16:48

    Content type: Research article

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  11. Family members are involved in the care of palliative patients at home and therefore, should be viewed as important sources of information to help clinicians better understand the quality palliative care servi...

    Authors: María Aparicio, Carlos Centeno, José Miguel Carrasco, Antonio Barbosa and María Arantzamendi

    Citation: BMC Palliative Care 2017 16:47

    Content type: Research article

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  12. Dying in the preferred setting is an indicator of good palliative care quality. Most people prefer to die at home. But does the quality of care as perceived by their relatives vary depending on the care settin...

    Authors: Dolf de Boer, Jolien M. Hofstede, Anke J. E. de Veer, Natasja J. H. Raijmakers and Anneke L. Francke

    Citation: BMC Palliative Care 2017 16:41

    Content type: Research article

    Published on:

  13. The death of a parent is a highly stressful life event for bereaved children. Several studies have shown an increased risk of mental ill-health and psychosocial problems among affected children. The aims of th...

    Authors: Ann-Sofie Bergman, Ulf Axberg and Elizabeth Hanson

    Citation: BMC Palliative Care 2017 16:39

    Content type: Research article

    Published on:

  14. Maintaining a sense of self-care while providing patient centered care, can be difficult for practitioners in palliative medicine. We aimed to pilot an “on the job” mindfulness and compassion-oriented meditati...

    Authors: Claudia L. Orellana-Rios, Lukas Radbruch, Martina Kern, Yesche U. Regel, Andreas Anton, Shane Sinclair and Stefan Schmidt

    Citation: BMC Palliative Care 2017 17:3

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  15. A compassionate community approach to palliative care provides important rationale for building community-based hospice volunteer capacity. In this project, we piloted one such capacity-building model in which...

    Authors: Barbara Pesut, Wendy Duggleby, Grace Warner, Konrad Fassbender, Elisabeth Antifeau, Brenda Hooper, Madeleine Greig and Kelli Sullivan

    Citation: BMC Palliative Care 2017 17:2

    Content type: Research article

    Published on:

    The Erratum to this article has been published in BMC Palliative Care 2017 16:51

  16. Few services are available to support rural older adults living at home with advancing chronic illness. The objective of this project was to pilot a nurse-led navigation service to provide early palliative sup...

    Authors: Barbara Pesut, Brenda Hooper, Marnie Jacobsen, Barbara Nielsen, Miranda Falk and Brian P. O ‘Connor

    Citation: BMC Palliative Care 2017 16:37

    Content type: Research article

    Published on:

  17. This pilot study aimed to investigate quality of life, psychological burden, unmet needs, and care satisfaction in family caregivers of advanced cancer patients (FCs) during specialized inpatient palliative ca...

    Authors: Anneke Ullrich, Lilian Ascherfeld, Gabriella Marx, Carsten Bokemeyer, Corinna Bergelt and Karin Oechsle

    Citation: BMC Palliative Care 2017 16:31

    Content type: Research article

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  18. The practice of continuous deep sedation is a challenging clinical intervention with demanding clinical and ethical decision-making. Though current research indicates that healthcare professionals’ involvement...

    Authors: Sarah Ziegler, Hannes Merker, Margareta Schmid and Milo A. Puhan

    Citation: BMC Palliative Care 2017 16:30

    Content type: Research article

    Published on:

  19. Bereavement support is part of palliative care. Sending out bereavement anniversary cards is one intervention of follow-up support for the bereaved. This study evaluated the suitability of bereavement annivers...

    Authors: Swantje Goebel, Sandra Stephanie Mai, Christina Gerlach, Ulrike Windschmitt, Karl-Heinz Feldmann and Martin Weber

    Citation: BMC Palliative Care 2017 16:26

    Content type: Research article

    Published on:

  21. Caregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement...

    Authors: Kia Toft Thomsen, Mai-Britt Guldin, Mette Kjærgaard Nielsen, Chaitali Laura Ollars and Anders Bonde Jensen

    Citation: BMC Palliative Care 2017 16:23

    Content type: Research article

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  22. Community-dwelling consumers of healthcare are increasing, many aging with life-limiting conditions and deteriorating cognition. However, few have had advance care planning discussions or completed documentati...

    Authors: Natasha Michael, Clare O’Callaghan and Emma Sayers

    Citation: BMC Palliative Care 2017 16:2

    Content type: Research article

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  23. Case management is a subject of interest within pediatric palliative care. Detailed descriptions of the content of this type of case management are lacking. We aim to describe the contents of care provided, ut...

    Authors: Charissa T. Jagt – van Kampen, Marijke C. Kars, Derk A. Colenbrander, Diederik K. Bosman, Martha A. Grootenhuis, Huib N. Caron and Antoinette Y. N. Schouten-van Meeteren

    Citation: BMC Palliative Care 2017 16:1

    Content type: Research article

    Published on:

  24. Research suggests that there may be bereavement experiences and support needs which are specific to family caregivers providing end of life care (EoLC), although this remains an under-researched area. This pap...

    Authors: Emily Harrop, Fiona Morgan, Anthony Byrne and Annmarie Nelson

    Citation: BMC Palliative Care 2016 15:92

    Content type: Research article

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  25. Existential behavioural therapy (EBT) is a recently developed intervention to support informal caregivers of patients in a specialist palliative care unit and was initially established as a six-session group p...

    Authors: Helena S Stöckle, Sigrid Haarmann-Doetkotte, Claudia Bausewein and Martin J Fegg

    Citation: BMC Palliative Care 2016 15:88

    Content type: Research article

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  26. Caregiver burden affects the physical, psychological and emotional well-being of the caregiver. The purpose of this analysis was to describe an informal caregiver cohort (n = 81), their subjective assessment of b...

    Authors: Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines and Orla Hardiman

    Citation: BMC Palliative Care 2016 15:81

    Content type: Research article

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  27. The balance between hope-hopelessness plays an important role in the way terminally ill patients report quality of life, and personal resilience may be related to hope at the end of life. The objective of this...

    Authors: Joao Paulo Consentino Solano, Amanda Gomes da Silva, Ivan Agurtov Soares, Hazem Adel Ashmawi and Joaquim Edson Vieira

    Citation: BMC Palliative Care 2016 15:70

    Content type: Research article

    Published on:

  28. Bereavement groups are believed to be beneficial as preventive interventions to reduce the development of complicated grief for people at risk after the death of a significant other. This study aimed to invest...

    Authors: Ulla Näppä, Ann-Britt Lundgren and Bertil Axelsson

    Citation: BMC Palliative Care 2016 15:58

    Content type: Research article

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  29. Most people with advanced dementia die in nursing homes where families may have to make decisions as death approaches. Discussions about end-of-life care between families and nursing home staff are uncommon, d...

    Authors: Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones and Kirsten J. Moore

    Citation: BMC Palliative Care 2016 15:55

    Content type: Research article

    Published on:

  30. Research on perinatal bereavement services is limited. The aim of the study was to compare the uptake of bereavement support services between two tertiary neonatal units (NNU), and to investigate influencing f...

    Authors: Jayanta Banerjee, Charanjit Kaur, Sridhar Ramaiah, Rahul Roy and Narendra Aladangady

    Citation: BMC Palliative Care 2016 15:54

    Content type: Research article

    Published on:

  31. Research has shown positive effects of music therapy on the physical and mental well-being of terminally ill patients. This study aimed to identify favored subjects and psychosocial needs of terminally ill can...

    Authors: Pia Preissler, Sarah Kordovan, Anneke Ullrich, Carsten Bokemeyer and Karin Oechsle

    Citation: BMC Palliative Care 2016 15:48

    Content type: Research article

    Published on:

  32. In the pursuit to provide the highest quality of person centered palliative care, client preferences, needs, and wishes surrounding end of life should be used to inform the plan of care. During a clinical asse...

    Authors: Shannon Freeman, Trevor Frise Smith, Eva Neufeld, Kathy Fisher and Satoru Ebihara

    Citation: BMC Palliative Care 2016 15:24

    Content type: Research article

    Published on:

  33. Several studies investigated the relationship between mental disorders and suicidal ideation. However, little is known about physical illnesses being the major trigger for committed suicides. It is necessary t...

    Authors: Martin Fegg, Sybille Kraus, Matthias Graw and Claudia Bausewein

    Citation: BMC Palliative Care 2016 15:14

    Content type: Research article

    Published on:

  34. Family caregivers play a key role in palliative care at home, and understanding the interdependencies in the constellation of patient, family caregivers and service providers is important. As few longitudinal ...

    Authors: Katja Krug, Antje Miksch, Frank Peters-Klimm, Peter Engeser and Joachim Szecsenyi

    Citation: BMC Palliative Care 2016 15:4

    Content type: Research article

    Published on:

  35. The death of a newborn is a traumatic life changing event in the lives of parents. We hypothesized that bereaved parents of newborn infants want to have choices in the personal care of their infant at the end ...

    Authors: Emily Shelkowitz, Sharon L. Vessella, Patricia O’Reilly, Richard Tucker and Beatrice E. Lechner

    Citation: BMC Palliative Care 2015 14:70

    Content type: Research article

    Published on:

  36. The question whether euthanasia should be legalised has led to substantial public debate in France. The objective of this study in a sample of French physicians was to establish the potential determinants of a...

    Authors: Lionel Dany, Karine Baumstarck, Eric Dudoit, Florence Duffaud, Pascal Auquier and Sébastien Salas

    Citation: BMC Palliative Care 2015 14:59

    Content type: Research article

    Published on:

  37. Instruments specific to palliative care tend to measure care quality from relative perspectives or have insufficient theoretical foundation. The instrument Quality from the Patient’s Perspective (QPP) is based...

    Authors: Tuva Sandsdalen, Ingrid Rystedt, Vigdis Abrahamsen Grøndahl, Reidun Hov, Sevald Høye and Bodil Wilde-Larsson

    Citation: BMC Palliative Care 2015 14:54

    Content type: Research article

    Published on:

  38. Chaplaincy is a relatively new discipline in medicine that provides for care of the human spirit in healthcare contexts for people of all worldviews. Studies indicate wide appreciation for its importance, yet ...

    Authors: Linda Emanuel, George Handzo, George Grant, Kevin Massey, Angelika Zollfrank, Diana Wilke, Richard Powell, Walter Smith and Kenneth Pargament

    Citation: BMC Palliative Care 2015 14:29

    Content type: Correspondence

    Published on:

  39. Advance care planning (ACP) is a process whereby values and goals are sensitively explored and documented to uphold patients’ wishes should they become incompetent to make decisions in the future. Evidenced-ba...

    Authors: Natasha Michael, Clare O’Callaghan, Angela Baird, Karla Gough, Mei Krishnasamy, Nathaniel Hiscock and Josephine Clayton

    Citation: BMC Palliative Care 2015 14:27

    Content type: Research article

    Published on:

  40. One essential element of research is the successful recruitment of participants. However, concerns are obvious regarding the ethical implications of involving terminally ill and even dying patients and their i...

    Authors: Stephanie Stiel, Maria Heckel, Sonja Bussmann, Martin Weber and Christoph Ostgathe

    Citation: BMC Palliative Care 2015 14:21

    Content type: Research article

    Published on:

  41. There are many potential benefits to chaplaincy in transforming into a “research-informed” profession. However little is known or has been documented about the roles of chaplains on research teams and as resea...

    Authors: Allison Kestenbaum, Jennifer James, Stefana Morgan, Michele Shields, Will Hocker, Michael Rabow and Laura B Dunn

    Citation: BMC Palliative Care 2015 14:20

    Content type: Research article

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  42. Illness attributions, particularly for those living with life limiting illnesses, are associated with emotional adjustment or psychological distress. Few studies have examined attributions among people severel...

    Authors: Jonathan Koffman, Cassie Goddard, Wei Gao, Diana Jackson, Pauline Shaw, Rachel Burman, Irene J Higginson and Eli Silber

    Citation: BMC Palliative Care 2015 14:13

    Content type: Research article

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  43. Chaplains are increasingly seen as key members of interdisciplinary palliative care teams, yet the specific interventions and hoped for outcomes of their work are poorly understood. This project served to deve...

    Authors: Kevin Massey, Marilyn JD Barnes, Dana Villines, Julie D Goldstein, Anna Lee Hisey Pierson, Cheryl Scherer, Betty Vander Laan and Wm Thomas Summerfelt

    Citation: BMC Palliative Care 2015 14:10

    Content type: Research article

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  44. Providing person-centred, dignity-conserving care for hospitalised patients is central to many healthcare policies and essential to the provision of effective palliative care. The Patient Dignity Question (PDQ) “

    Authors: Bridget Johnston, Jan Pringle, Marion Gaffney, Melanie Narayanasamy, Margaret McGuire and Deans Buchanan

    Citation: BMC Palliative Care 2015 14:9

    Content type: Research article

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  45. Dignity Therapy (DT), an intervention for people facing serious illness, focuses on dignity conservation tasks such as settling relationships, sharing words of love, and preparing a legacy document for loved o...

    Authors: George Fitchett, Linda Emanuel, George Handzo, Lara Boyken and Diana J Wilkie

    Citation: BMC Palliative Care 2015 14:8

    Content type: Research article

    Published on:

  48. Music therapy is one of the most frequently used complementary therapies in different palliative care settings. Despite its long tradition and high acceptance by other health-care professionals, evidence on th...

    Authors: Marco Warth, Jens Kessler, Julian Koenig, Alexander F Wormit, Thomas K Hillecke and Hubert J Bardenheuer

    Citation: BMC Palliative Care 2014 13:60

    Content type: Study protocol

    Published on:

  49. Care homes are increasingly becoming places where people spend the final stages of their lives and eventually die. This trend is expected to continue due to population ageing, yet little is known about public ...

    Authors: Natalia Calanzani, Katrien Moens, Joachim Cohen, Irene J Higginson, Richard Harding, Luc Deliens, Franco Toscani, Pedro L Ferreira, Claudia Bausewein, Barbara A Daveson, Marjolein Gysels, Lucas Ceulemans and Barbara Gomes

    Citation: BMC Palliative Care 2014 13:48

    Content type: Research article

    Published on:

  50. Despite research efforts over recent decades to deepen our understanding of why some terminally ill patients express a wish to die (WTD), there is broad consensus that we need more detailed knowledge about the...

    Authors: Kathrin Ohnsorge, Heike Gudat and Christoph Rehmann-Sutter

    Citation: BMC Palliative Care 2014 13:38

    Content type: Research article

    Published on:

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BMC Palliative Care

ISSN: 1472-684X

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